Thread: I hate the heat! Hate it!
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Old 05-27-2009, 05:27 PM
TracyAZ TracyAZ is offline
Junior Member
  
Join Date: Apr 2009
Posts: 17
15 yr Member
TracyAZ TracyAZ is offline
Junior Member
 
Join Date: Apr 2009
Posts: 17
15 yr Member
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Hi Erin,

Thanks a bunch, DV means double vision, and i don't handle the heat good at all. I've notice since i moved here my double vision has gotten worse. I'm on prednisone 10mg a day, and Imuran 150mg a day. I was just diagnosed it MuSK just last year, so i don't know much about it, except for that having a thymectomy wasn't needed, and that i need that little extra umph!! Meds don't seem to really help as much as they would someone else. They do have a support group in AZ, but i dont think it's really that big, and they don't meet up as much like the IL chapter. I've had MG for 16 years now.

Tracy

Quote:
Originally Posted by erinhermes View Post
Hello and welcome to neurotalk! You are going to love it here! When I first started (a year ago) I had no one to share my fears/frustration with....this site has been a true life saver for me!

What is DV? How do you handle the HEAT in AZ? You are MuSK positive? How is that different from generalized MG? What meds are you on? Do you have a support group in AZ? I'm not trying to be nosy, I'm still a "newbie" with MG (dx'ed last year on March 6th - thymus removed April 22nd).....

I would love to hear from you when you have some time!

Erin
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