Hi there,
I have the temporal lobe seizures too. At first my epileptologist thought it was just the right lobe. But then after removing the right lobe; he saw that since I was still having seizures but A LOT less. They were also coming from the left temporal lobe. I go through TOTAL confusion after the seizure. I have petit mal seizures on the left temporal lobe. after the staring spell I go into total confusion, and I some times hallucinate. I asked my epileptologist why does this happen. He said that the staring spell is the seizure. After the staring spell the electrical activity is having a hard time getting back to normal. So that's what it puts me through when it's trying to get back to normal. If you'd ever like to go to the live chat that has people with seizures, go to
www.epilepsy.com
Sincerely
shawn33
Quote:
Originally Posted by Luna Marie
I was recently diagnosed (after a syncope attack) that my eeg showed I had sharp wave activity with phase reversal localized to the left temporal lobe. I also was diagnosed with basilar migraines. I have no headaches, just flashing lights with my migraines. My neurologist told me I could have been born with the epilepsy or been injured someway or had a high fever at some time or another. It could have been all 3 because all 3 have happened to me.
I have been "quirky" all of my life and realize after researching this type of epilepsy I have had "spells" all of my life. I am an artist and writer, very religious (an inter-faith minister) and am a socialworker. My memory seems fine but I am forgetful of little things, like finding my keys or glasses. Lately though I have noticed when I get those strange feelings that afterward I am confused for a period of time.
This came as a shock to me and for some reason - even though I know I have had these spells all of my life, I have developed anxiety and depression. I think it was brought on because of the medication they put me on because I had thought originally "If I have had this all of my life, why should I let it bother me now?." I had to stop medication because of the adverse effects (Topamax) and still haven't pulled out of it. Because I am in mental health field and have treated others with these problems, I know I need help. I thought perhaps if I could interact with others who have dealt with this strange condition and who also, cannot tolerate medications due to chemical imbalances, perhaps it would help me cope. I am also seeking psychiatric help.
In one of my fits of deep, dark depression from the medication and maybe from a seizure, too, I cut off my long, beautiful hair. At least I didn't cut off my ear like Van Gogh, who I understand, also suffered from this malady or as some of the ancients called it "a sacred gift".
Is it a curse or is it a gift?  |