Ally, you're not the first person I've heard have wasted time, money and hopes with the Mayo. Amazes me since they have such a world wide reputation to live up to. Maybe they've just gotten too big for all our own good! I'm sorry you're still looking for the elusive dx also. Some of them question you if the antibodies are all you're missing, some if you have the antibodies without the "right" EMG! Some of us just can't win! Hope you both get some answers that stick soon!