Welcome Susie!

Good advice from the others.

As it can take a while to dx whatever this is, let me add a thing or two. Don't be shy about using any method to help you cope with your symptoms.

It took a long time for me to get dx'd with some of the stuff, and still in ms limbo. So I held off using even the cane. Stupid of me.


I thought, if I don't really have ms, I shouldn't really need these things.

You know, you use meds to tx your symptoms, you use a knife to cut your food. Think of all these other tools the same way, whatever makes your day easier you use it.

The electric carts for shopping, a scooter to get around at work, etc, can save you tons of exertion.

Also keep in mind that fatigue can come and go. I have boughts for months at a time then it just goes away as fast as it hits. My first in fall '02 was one of the worst - I did not have it half that bad in the last year, and you'd think it would progress and get worse, but that's not always how it is.

And I'm glad you found us. It may be good for you to see how varied this can be - no two people have the same journey.


Good luck!