I've been reading a little about the history of AIDS activism, which is the only time in the last few decades where patients took matters into their own hands. What can we learn from this?

http://www.thebody.com/content/art31153.html

That's one account. I think it would take incredible unity and what would feel like strident demands or nothing would ever get done. Like if all the PD organizations together confronted Amgen about why they won't release the rights to GDNF to other takers. But there would have to be a lot of charged-up people ready to lay themselves on the line here....

Worth thinking about at least....