Quote:
Originally Posted by dlperkins
Hello,
I have Palatal myoclonus. I would like to chat with anyone who has it. I gave up on drugs. I'm not going to have surgery, so that leaves Botox injections. I've found someone who has given this in the tensor veli palatini muscle to relieve vibrations of palate, and therefore the ear clicking. I had one injection, which didn't work, but now they know a bit more where to put it, so I'm going to have another. Kind of working up the nerve to do it.
Diana
|
Hi Diana,
I was diagnosed with palatal myoclonus 12yrs ago. I hav constant clicking in both ears, which can be heard by other people. I hav been on rivitrol, epilim and tegretol medication, none of which worked.
In the last few months the clicking has been painfull and therefore I am now looking inot more treatment options. Im considering the botox injections but am a little worried about the side affects. Is it true your speech changes??
Also do you know anything about the drug Trihexphenidyl?
Renee