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Originally Posted by ali12
Hi guys,
I'm not sure if I posted about this before and can't seem to find any posts on it so thought I would repost.
I just wondered whether any of you have actually fainted because of your RSD?
On Monday, I was getting ready to go to school and got out of the bath tub and after about 5 minutes or so, I started feeling very dizzy. I went outside to try and get a bit of fresh air and my mum saw me and said that I looked really pale and told me to sit down. I was that dizzy that I didn't really know what was happening, I could hear my mum talk to me but couldn't move and it was too much of an effort to try and talk back to her.
I somehow managed to sit down and for a few seconds, everything went blank so I must have passed out for a little bit.
The dizziness lasted for about half an hour and I had to have lots of drinks to try and start feeling better. My mum thought that it was maybe caused by having the bath water too hot but it was pretty cool.
I have been feeling dizzy for the past few days now but have felt dizzy before all of this started to happen. I am OK some of the time and then I just get really dizzy and need to sit down.
I hate my PT session today but couldn't really mention it as the leading PT wasn't there. Her father-in-law passed away suddenly today. I feel really bad for her as she lost her mum and dad at Christmas and now this. I was working with another PT and the Neuro PT who was really nice. They tried putting my leg into the splint again and got me walking a few steps with it on - that hurt a lot!!!
They are still wanting to admit me into hospital to do the inpatient PT. I'm not sure when that will be but they are going to try and arrange it pretty quickly. They want me to try some intense PT before going down the route of Botox which makes a lot of sense to me. They also want to try and get my postural issues sorted as I seem to slouch a lot - the PTs said that my muscles in my back are really big compared to what they should be as I haven't used them that much for a while.
Any feedback on the dizziness and RSD would be greatly appreciated!
Thanks in advance!
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Hi Ali,
I am not sure about fainting but I do have dizzy spells. Within the last several months, I had several during therapy and at home. I almost fell in the backyard once lol before I could grab on to something. It would have been a nasty fall since I just had back fusion surgery in Oct 2008. I am not sure if one can include the feeling of tiredness and fatigue with fainting. I know that I crash bad as if I had tons of coffee and am coming off the caffeine high. It's to the point where I do feel like I can pass out. Then it's followed by muscle and joint stiffness and tenderness. This would be something to follow up with my doctors... good point. I can go downhill and fast when my bouts of fatigue hit me. Normally what I try to do when I get dizzy is focus on a object and just stay there until it passes...kinda like spinning really fast but you focus on one thing to keep your concentration from falling. Oh and of course grab on to something if you can which for me is my cane. You also mentioned about being admitted into a hospital. Food for thought, one needs to be strongminded to be there. I had to be in a rehabilitation hospital after my surgery and it was no fun. If you do just stay focused on your objective which is therapy and to get out better than when you went in. Having a cell to text is also very helpful to keep in contact for support. That was my lifeline...