as long as there has been a diagnoses:
RSD, or CRPS Whatever....

I've been in this "Circus World Since 1983".. Has anyone here been there this long? (I'm NOT trying to set a record, just trying to see that we agree)?

I have a friend or two that have had it a long time, and YOU are many of them.

Yet,
Don't it still seem that, we need to "Search Out" doctors who are knowledgeable about our malady?

Don't it seem that when we find one who is "knowledgeable", that we still are on a "wait and see" basis? Still Kind of "Test Dumbies"?
When will this change?
What we do, is Not Only for Ourselves, but for those who come after. Understand, If I were the "One" with RSD, I would never wish it on my worst enemy (and, I've made it a point, to have none((enemies)).
So then, what are we to do?

WE must be STRONG, And CARRY ON!
From E'Clapton's song, "tears in Heaven", We don't belong here, in heaven...

It's NOT as if we have "High Blood Pressure", or, worse, Even let's see?
Um.
Colo-Rectal Cancer?

If you have one of those.. You get "rushed in to a drug regimen" , OR
Into surgery and Chemo.

RSD/CRPS, Nope.
We're still "Testing" the waters...
And, some doctors want to write that "ultimate Paper" on it.
We see that on the Net and, we appreciate it. It "Validates us".

But, this Bastard of a disease (sorry Ali), (My heart goes to you, mostly, our child!)~!
is just that!
It hides.
It changes shades.
It changes faces, and it changes "symptoms".
We must keep a "journal of pain" to take to the doctors, because we get "RSD BRAIN". We forget Every thing when we're "On the Spot"!
(Our Attorneys had better understand that too!)

How the hell do we know how to describe it?
We have RSD BRAIN!

So then,
let the suggestions begin!
(I hope and Pray, that this thread will last, a long time!)

First I'll say this.

Once you, YOU decide that you have this, (I knew before ANY doctor diagnosed me, back in the 80's, thanks to a brochure from the rsdsa.org)
(Consider them in your will, for a small percentage, and ask your family as well!).

Back to the point,..... Uh Oh! rsd brain!

In 1983-1989 (my diagnoses)
7 Years for a diagnoses. Thought I was losing my mind. I grabbed Dr Schwartzman, and hugged him. I was in tears, not so much because I was sad to have this despicable disease, but, to know I WASN'T LOSING MY MIND! (As those closest to me, would have made me think). And, those are all long gone!!
Part and parcel of this disease...


We are at a beginning inception, conception, origination, genesis, emergence, starting point, launch, outset, Oh!
Did you see I checked my Mac's Dictionary? Thesaurus?
I did.

So, I thought I was near the beginning in '83, what I realize now, is that not much has changed.

We've got to go to RSDSA.ORG and Buy those T shirts!
Bumper stickers!
Posters, whatever the hell they've got!

Nobody knows what "RSD" Is!

Hell, we can't even decide what to call it!!!
Craps or RSd!/????
HUH?


So folks,
WE have GOT TO MAKE A GROUND SWELL MOVEMENT NOW!
NOT LATER, NOW!

It's Up TO US, TO EDUCATE THE "dumbpublic" about RSD!
I've studied "marketing."

Do you know how many times a person is "bombarded" with a single "slogan, or Logo" everyday? Just to get them to remember it?

iPhone
Windows
I Love It!
Like that....

How can we "Break RSD Out?"

Just keep wearing those "Hip" clothes,
and bumper stickers,
and we've got to call on the rsdsa.org
not only to buy those things,
but to bring us MORE!


I WANT TO WEAR A POLYPROPYLENE T SHIRT THAT HAS RSD PRINTED ON IT!
EVERY DAY!

That's at least 2 shirts ! (Haha teasin'g didja get that?)
I need 6-7 at least!

I vote that we ALL buy 5!
OK, 3-5.
We do wash.

But, we've gotta propel this MONSTER into the public's eye~!





Thoughts?



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