NeuroTalk Support Groups - View Single Post

erinhermes · 05-29-2009, 11:30 PM

Hey hon! Glad to hear that the cyclosporine isn't totally to blame, but dang (!) no IV IG or plasma? It must be really hard on the kidneys!

You are so right about the whole dr thing! It is also your wonderful personality that MAKE them want to help you - much easier to deal with a pleasant person than a sullen one, ya know?

I love my drs and nurses! They have been so kind and wonderful to me! I tell them all and give them little gifts - nothing expensive @ all, just little things that I pick up @ Walgreens during the week to show them how much I appreciate them!

Had a really, really busy day today! I didn't get home till 8:30 - I hope I don't have to "pay" for it 2morrow!

No appointments for a WHOLE WEEK? That sounds like Heaven! I am so happy for you! Enjoy it! Is your daughter still @ home? I hope so!

Big hugs!
Erin

Quote:

Originally Posted by Maxwell'sMom

Hi, My kidney biopsy came back, and for the most part, it is Not the CycloSporine that's causing the kidney damage. It is from long term Uncontrolled high blood pressure, with some damage from the cyclosporine.
IVIG and Plasma are bigger no no's than the CycloSporine, so we're staying on CycloSporine, and will monitor me closely. Both my Nephrologist called me, and my Neurologist called me.
You know, I've complained about certain past doctors, and have heard others say how awful some doctors can be, I really wanted to take a moment and say, I have a great team of caring, concerned, loving human being, for doctors. And in addition, are very good at what they do. I'm just so thankful for them, and all they do.
So, after all that worrying, and stuff, I'm staying put medicine wise.
I'm so tired. I've had a lot of medical stuff this week. Next week, i can't believe it, I don't have any apppointments. yay.
First time in Months.
Gonna try and get some stuff done around here. Slowly at my own pace.
Love Lizzie