Originally Posted by ali12

Hi guys,

I'm not sure if I posted about this before and can't seem to find any posts on it so thought I would repost.

I just wondered whether any of you have actually fainted because of your RSD?

On Monday, I was getting ready to go to school and got out of the bath tub and after about 5 minutes or so, I started feeling very dizzy. I went outside to try and get a bit of fresh air and my mum saw me and said that I looked really pale and told me to sit down. I was that dizzy that I didn't really know what was happening, I could hear my mum talk to me but couldn't move and it was too much of an effort to try and talk back to her.

I somehow managed to sit down and for a few seconds, everything went blank so I must have passed out for a little bit.

The dizziness lasted for about half an hour and I had to have lots of drinks to try and start feeling better. My mum thought that it was maybe caused by having the bath water too hot but it was pretty cool.

I have been feeling dizzy for the past few days now but have felt dizzy before all of this started to happen. I am OK some of the time and then I just get really dizzy and need to sit down.

I hate my PT session today but couldn't really mention it as the leading PT wasn't there. Her father-in-law passed away suddenly today. I feel really bad for her as she lost her mum and dad at Christmas and now this. I was working with another PT and the Neuro PT who was really nice. They tried putting my leg into the splint again and got me walking a few steps with it on - that hurt a lot!!!

They are still wanting to admit me into hospital to do the inpatient PT. I'm not sure when that will be but they are going to try and arrange it pretty quickly. They want me to try some intense PT before going down the route of Botox which makes a lot of sense to me. They also want to try and get my postural issues sorted as I seem to slouch a lot - the PTs said that my muscles in my back are really big compared to what they should be as I haven't used them that much for a while.

Any feedback on the dizziness and RSD would be greatly appreciated!

Thanks in advance!