Member
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Join Date: Feb 2009
Location: Oregon Coast
Posts: 503
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Member
Join Date: Feb 2009
Location: Oregon Coast
Posts: 503
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Hi,
Just thought I would share a little here.
I have MS diagnosed 2-7-08, and POTS June 08. Then there is my undiagnosed problem which causes me more problems than anything. I get spells where I can't move, talk or open my eyes and it has become increasingly more difficult to breath during them. They have looked into all kinds of things including MG, Hypo Kalemic Periodic Paralysis, and now Pompe's Disease (still waiting for the results of that one) but as of right now no answers.
I have Emily who is four and David who is two. They are very energetic but very observant and caring. Emily is wise beyond her years and tries her best to help me in any way she can. I wish she didn't have to but I know she is getting some very good personality traits from it.
It's nice to be able to talk with other people going through the same kinds of things.
I hope everyone is doing well today.
Kristie
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