A few thoughts and first I am sorry for your pain and suferring. I have RSD and PN and came to this board at 28 and now am 30. I understand how scary and painful this is. My pain started in my left inner ankle/foot/calf but since then spread to my right and also have severe eye conditions that have sent me to 11 eye specialists which also spread to my ear pain and have migraines at times. I also am effected by the cold where my pain is so bad I am crying again. I too have had multiple mris,emg,etc. Many neuro apts,reumo,etc.
A few ? how is your rsd pain being managed and treated? This is very key and if you go over to the rsd forum there are a lot of imformed people there. I am on my 4th plus pain doctor who has begun to really work with me and look outside of the box and I hope you can find the same because we are hard cases being young with so many symptoms. I never know with myself since there is so much unknown about rsd if a new condition is the spread or something unrelated. Many over on the rsd board in addition have a lot of what you stated. Are you on any meds? I know you stated the tests you have had but what doctors have you seen? Like neurologist,endocronolgist etc? Do you have any other past health conditions or sicknesses? Any other problems you have had that could of contributed? If you want you can email me any time. This board has been amazing to me and I hope you find the same