Sal, Yes there is no effective treatment for ITP. Of course we have no idea how or why he developed this disorder. Our daughter is OK with treating as needed. However the docs have been really pushing hard for continuous steroids etc. They have practically threatened to report her to protective services for not following their directions.

Ben is relatively healthy except for his platelets and potential for bleeding which is also relartively rare.

The medical profession wants to be in charge of all aspects of his life, even if there is no definite research to support their plans.

Not much fun. Thanx for caring. Betty