Oh, Jeez....
I see I need to apologize to DEW, and Carrie!
(I'm sorry Ladies), and to anyone whooooo was tryin to help.

RSD doesn't meant alot nor does CRPS to those "who don't know".

It's not like "Cancer". That demands attention, and I don't want to "compete" with that.
RSd is not life threatening to that extent.

However it IS Completely Quality of life threatening! And, can do lots of harm.

These doctors (who don't have the disease) aren't the wisest.
My doctor has had RSD, so too has his wife. (along with 'C').
This couple "gets it".

Yet, they're too busy helping everyone, to come up with a new name...

I think I may start using "Rsd'd" (rusted) to my docs office staff, and others might use "Craps", yep, craps, for what they discuss on the phone with office staff. These office staff I find, are usually ready for a good joke.

The point still is,
We're Test Dumbies!
Not as "Dumb" as we were 20 or even 10 years ago.

My Doctor is GREAT!
But, he's had a heart attack, and is slowing down.
I trust him of course, with my life!
He trusts me, as well. And I appreciate that.
I cannot let him down!

He doesn't use me a a "test dumbie" as another famous Dr from Philly does.
My doctor is more conservative, and I'm a tough case, with the tbi, and tos, and sleep apnea.


We Each, need to carefully step back for a moment, (in the docs office) before we leave, (EVen if we must ask for a moment or two), to consider everything we've heard, been told, so we can think of, and ask, appropriate questions, (You can always ask a simple one... such as what side effects will I experience, and when Do I need call?), but for bigger things, ask questions!
They don't just automatically tell ya!

I think it's VERY helpful to take a friend, INTO THE OFFICE!
If, for no other reason than this.
So that this friend, will go on and communicate with others, about the "treachery" of this Monster!, and just get some dialogue going!

OK,
Good nite,
Carry On!

Pete