Pete -

Following up on Loretta’s suggestion, the guy to talk to is Jim Broatch, the executive director of the RSDSA. He's readily available, completely connected, and the theme of your thread is one of his primary missions. Here's the complete contact info for the RSDSA:

RSDSA
P.O. Box 502
Milford, CT 06460

Tel: 203.877.3790
Toll Free: 877.662.7737
Fax: 203.882.8362
E-mail: info@rsds.org

RSDSA Review
RSDSA Communications/Publications
1123 Broadway, Suite 613
New York, NY 10010

Editor: rsdsa.newsletter@rsds.org
Living with RSD: living.with.rsd@rsds.org
Patient Representative: patient.representative@rsds.org
Ashley Mahoney: ashley@rsds.org
Jeanne Lazo: jeannelazo@aol.com

The other group that might be worthwhile reaching out to is the American Board of Pain Medicine, the über pain doctor organization I mentioned in another thread http://neurotalk.psychcentral.com/thread87978.html. However, the only contact information on their website is:

To request more information about ABPM or to provide feedback about this web-site, please contact us: info@abpm.org

American Board of Pain Medicine

4700 W. Lake Avenue
Glenview, IL 60025
847/375-4726
fax 847/375-6477

http://www.abpm.org/

I can't even find the name of its executive director on the website, but that's not unusual for medical societies.

I would, accordingly, suggest that you pick up the phone and introduce yourself to Jim Broatch, who's a really good guy. He would in turn be able to give you advice as to how to approach the ABPM, whose interests could only be served in greater public awareness of CRPS, as in encouraging more medical students to pursue residencies in pain management.

And about CRPS, sorry, I think we're stuck with the name, that is until it is no longer a "syndrome" and there's general agreement in the scientific community on its etiology and maintenance. My guess is that's at least 6 -10 years down the road.

Mike