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Old 06-02-2009, 05:33 PM
Bearygood Bearygood is offline
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Join Date: Jan 2008
Posts: 970
15 yr Member
Bearygood Bearygood is offline
Member
 
Join Date: Jan 2008
Posts: 970
15 yr Member
Default Okay, so I've apparently joined the "black hole" club.

I'm going with the "treat the patient, not the MRI" attitude here -- I feel okay! Still, it was not what I wanted to see on the report. Non-enhancing 8x13 mm in the right posterior frontal lobe. So from what I understand this is is permanent axonal damage, correct? Other MS "evidence" was diminished although still clear. Yup, okay, I still have MS -- I get it!

My MS specialist has not been very helpful to me so it was my neuro-op who actually ordered the brain MRI (in addition to the MRI of my orbits). I see her tomorrow so I will discuss this with her then.

Just a note about ON -- I still do consider myself very lucky but the radiologist report does confirm some atrophy although the good news is that it's stable.

Darn confusing disease! It's almost crazy that you can feel pretty much okay when these things are happening in your brain! I am very thankful that I DO feel okay -- I don't take it for granted at all. BUT -- it's still a puzzler!!!

So please tell me what you know about black holes. I will do a search on the board as well.

And lastly, as I wrote in the newest vitamin D thread, I do find it pretty interesting that I was stable for 2 years since dx and my D levels were normal during that time but I am now deficient -- and have this new lesion which they say is actually a black hole.
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"Thanks for this!" says:
Desinie (06-03-2009), dmplaura (06-03-2009), SallyC (06-02-2009)