I'm sorry but I don't know much about that condition, but we do have a Chiari Malformation & Syringomyelia Forum here on NeuroTalk.
If you haven't found it yet, here's a link that will take you there :
http://neurotalk.psychcentral.com/forum71.html
Other than that, this site has some good information. :
http://www.conquerchiari.org/index.htm
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