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Old 06-03-2009, 01:15 AM
Bearygood Bearygood is offline
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Join Date: Jan 2008
Posts: 970
15 yr Member
Bearygood Bearygood is offline
Member
 
Join Date: Jan 2008
Posts: 970
15 yr Member
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No problem about the humor. What else do we have?

Yup, it would be nice if the disease had rules -- and also if our doctors were on the same page because a lot of the time they sure don't seem to be. I can't be sure but I think that my MS specialist would never refer to disease activity as a silent relapse. To be honest, sometimes I think the researchers and doctors would do very well to get all of us in a room and LISTEN to what we think and the questions we have -- as well as the theories, no matter how absurd they may be. This disease is frustrating for so many reasons and one of them is that our doctors aren't even all on the same page!

Slight tangent -- I haven't been around lately but I'm guessing the latest theory about MS being a vascular and not autoimmune disease was posted. Actually, very interesting theory but all of the information I've accumulated in this brain of mine makes me feel just dizzy. I'm sure many of you feel the same way.

Anyway, I'll keep you all posted on what I find out. Honestly, I know this is not good but I know it's also not freakishly uncommon. The only other cyber MS person I know who showed a black hole on her last MRI is on Rebif and and her doctor still feels that the drug is working for her. So confusing. In the meantime, I've been thinking about what I've been doing differently in the last year and come up with quite a few things. Of course I can't swear that these things made a difference but they're still good to think about and I feel I need to be more diligent.

Polar, I have to read more about what you went through. I didn'It realize that you hadn't had a real relapse before. Are you OK now?

I haven't been able to be around very much but I really think about everyone here on the board even when I'm not.

Last edited by Bearygood; 06-03-2009 at 03:31 AM.
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"Thanks for this!" says:
Aarcyn (06-04-2009), dmplaura (06-03-2009)