I am sorry if I posted this before. Can not remember.

This has been an interesting year. I was dx'd last February after two episodes of ON, abnormal MRI, and abnormal neuro exam.

But last year things were "mild" or "early" or so they said.

This past year has been disappointing. I have not gotten better.

My eye has improved but my physical issues continue to add up.

I was sent to PT and OT this fall. I have significant weakness in the lower part of my body and in my right hand.

At this point I have a walker and a cane. I also have leg braces. As long as I have my braces on I can walk without assistance as long as there is something like a wall or something else I can get to if needed.

Without the braces I have a lot of trouble. My legs hyper extend and my toes catch on the floor.

My MS doctor wanted me to see a psychiatrist because he was not happy with my situation. He thought it may be stress. My psychiatrist gave me the evaluation and asked me to tell him again why I was there. I knew I was sane!!

He said there was nothing that would cause me to have the physical problems I am having. So my Ms doctor started me on a daily dose of Prednisone. A very small dose but I still hate the very flushed feeling it gives me.

It has helped though. My legs do not feel so much like lead.

My MS doctor sent me a letter a months ago saying they were closing the clinic. It mostly relies on outside funds in order to keep their costs low.

The clinic was found "not profitable" by the hospital it is associated with and they decided to close it.

SO I had to find another MS doctor. I have not been to see him yet. I hate starting with a new doctor. I have seen some neuros who have been so clueless.

I am unhappy with this progression. What seems to be happening is a slow progression. I have not had any "flares" that have required any hospital stays. Only ON twice.

My poor strength and abnormal reflexes continue to advance. I am just confused and frustrated.

Sorry this is so long. Thank you for reading if you made it this far!

I am really not whining but just wondering. My MS doctor was frustrated last time and he said we have a major problem here, you have a long way to go. What he meant was I am 46 and have a long life to live and I have progressed over the year.

On a positive note I have respite for my children and was given a grant by our local MS society for help with house work! yeah!

LA