Quote:
Originally Posted by EHorst99
I understand completely what you're going through. I'm a 1 1/2 into my experience and, unfortunately, it keeps progressing a bit a time.
I started on Gabapenton about 9 months ago. Initially a small amount, but now I'm at 2400 mg per day. It took me bit to adjust to the sleepiness, but got over it. You, too, may adjust. I'd stick with it a bit and see if you can adjust, too. I believe gabapentin is much cheaper than some of the newer alternatives. Since you don't have insurance, this may be a consideration.
I'm still searching for the best shoe solution. Every so often, I have to stand a lot in a single day (like yesterday). By the end, my feet are killing me. But as soon as I can lay down a bit, they do improve.
I wish you all the best. I'm still trying to figure this out for myself, too. I'm not even quite 50 and not looking forward to this for the rest of my life. But, it appeas to be the hand that I've been dealt.
Regards...
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I am so sorry you too are living with this terrible painful illness. It sure doesen't seem wonderful thinking about your future does it. Are you still able to work? I am presently out of work, I do clerical work such as receptionist and some days I wonder how the heck am I going to work feeling like this especially with my feet swelling all the time too. I am just 51.
Can you recommend any comfy shoes you've come across?
I will continue the meds as Dr said they should help more, take more as needed and be PATIENT! Easy for him to say