Hi,
sorry for the slow response but I have been in hospital since Monday and have just got out today.

I had a Tensillon Test there, now despite the fact my ptosis resolved and I could start to talk again, this only lasted a minute and apparently this is not a positive result. I would like your thoughts.

I also did an ice pack test and my ptosis resolved but again for around a minute. Again I have been told it was not a positive result.

This morning in hospital I couldn't see my left eye lid would hardly move and when it did open my eye ball was jerking all over the place. I was very weak etc.

My consultant has stated I dont have MG but Cortical Plasticity from a virus he reckons that gave me the Ptosis in Januray 2007.

To say Im distressed is an understatement. Luckily we used my phone to video the tests. Once I have figured out how to download those onto the computer I will be emailing them to Prof. Vincent for a second opinion.

I went into hospital on monday as my lower face drooped, I looked like a sad clown and I couldnt talk. Basically they have left me lying in a hospital bed for 5 days.

When I was told this morning about the cortical plasticity I lost it. I am at the end of what has been a rather long tether. They were going to discharge me when I calmed down, as in the heat of the moment I said currently I have no life so I might as well not continue living. If they gave me a hundred paracetamol I would take them and not bother them again. I am very angry and just to reassure you I wont be doing that. I just dont know what to do. I discharged myself and got my mum to take me home. Im home barely able to walk and they say theres nothing they can do to help me.

So there, thats my week!

Rach