So I had my two IViG treatments Wednesday and Thursday...I passed out both days during the procedure due to the benedryl (that stuff is really strong!). Anyway, the first day, I was only asleep for 2.5 hours, so I was able to hydrate well during the procedure, but yesterday, I was asleep for about 4-hours. When I woke up, my hands were really swollen (which isn't uncommon for me for them to be a bit swollen but they were REALLY swollen)...I felt really groggy and swollen all over...Like my body was a sponge filled with the stuff...Anyway, today I woke up with an excruciating headache-the mother of all headaches...I have never had a headache like this before...Anyway, I ended up going to the hospital...They wanted me to do a catscan, but I figured that maybe the headache was a normal side-effect of the treatment (the doc. only wanted to do the scan as a precaution, he felt that my headache wasn't too serious), although I am still a bit worried about it....I feel sick...My left eye is swollen and red...i feel a bit nauseous...I declined the scan since they said that there's a lot of radiation involved and I already have a thymoma and a tendency to have lumpy breasts (fibroadenoma, cysts)...

How many others have developed a really bad headache from the treatments? I don't really feel different, almost worse...I have a feeling that plasma is better for me...I guess I will have to see since I know it can take a few days to work....

It's funny how this treatment works...For people who don't have an immune system, it provides one...For people have an immune system, but one who doesn't like their own body (lol), it seems to suppress it...I feel so fluish and not much better!

Anyway, I hope my headache goes away tomorrow morning...I'm scared of what I will find when I wake up tomorrow!


Nicky