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Old 08-24-2006, 12:05 PM
Busymommie Busymommie is offline
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Join Date: Aug 2006
Location: Winston-Salem, NC
Posts: 116
15 yr Member
Busymommie Busymommie is offline
Member
 
Join Date: Aug 2006
Location: Winston-Salem, NC
Posts: 116
15 yr Member
Default Measuring success? seizure control, what is it?

I just got a copy of Rileys last neuro visit note, I was a little shocked and disappointed too.

Dr. Parrott stated "Vagal Nerve Stimulator has not been of benefit to date"

I am really not sure that I would say there has been no benefit, as dissapointed as I am about it I do think she has had some positive stuff, she is not as post-icitial anymore. We have been able to avoid using diastat a time or two. I thought that was some success.

Someone in another group asked a similar question a few days ago and now I am asking myself. How do we measure success v/s failure?
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Denae- Mom to
Riley (9)- Lennox Gastaut Syndrome & Charcot- Marie-Tooth
Brittany (11) a Prissy Princess
Sarah (14) Aspergers Syndrome
Victoria (16) Above Average Teenage sister
Jade (11) my niece, but now also my baby
Jacob (6) Possible Aspergers, but we have to sort through his anger/abandonment issues first
Jackson (4) The sweetest little guy you will ever meet.
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