Hi Kate,

Sorry you are having to deal with that also!

My big toe sticks up a lot also and my toes curl under my foot on my RSD leg. They have been like that since I sprained my ankle and first developed RSD above 2 years ago. It is really frustrating as I have no control over my toes and they just do what they want, when they want!

When I was diagnosed with RSD, my PM Doctor was surprised at how bad my leg was and said that I have a movement disorder called Dystonia which is thought to be a complication of RSD.

Have you tried any muscle relaxants to see if they help you? I have tried all sorts of muscle relaxants but none have really worked however I have heard people have good results from meds such as Baclofen. My nanan had Progressive MS and similar spasms to me and Baclofen helped her a lot.

I'm not sure what to suggest that might help you as nothing has really helped me. I am in Physical Therapy at the moment and my PT's are using a splint to try and help although it is for the foot rotation (Dystonia), not for the toes.

My PM Doctor has suggested Botox for me but after talking to other doctors, no one is willing to do it as I had a nasty side effect from the nerve block. My PT's are looking at booking me into hospital to do some intense PT with me.

If you can, I would try and get some PT as it can really help some people and the PT's can give you some good exercises that may help. It's really important that you keep moving as much as possible with RSD. My PT's are always trying to 'push' my toe down when it sticks up in the air but it doesn't really help that much.

Sorry that you are having to deal with this also! Please know that I am here for you and understand what you're going thru!