Joelle, I just saw this and I am so sorry for your ordeal. I am Jim's proxy when he's unable to be, it's in his records. No one but me can make decisions for him and/or get information. If i am unable to be there, the boys are his proxy. When he was in ICU I am the one who figured out it was Gabapentin withdrawl causing his mania and seizures. You MUST have someone who can watch over you at all times when your unable to. Fortunately for us, the ICU listened to me rather than his neuro once they realized he dropped the bomb, literally. We now have a spinal cord doctor and only see a neuro once a year. His old neuro was fired and placed on MS research twice a week by the hospital.