I have seen a neurologist, GP/internal medicine, and an ENT (listed w/ the various tests broken down below...it was actually the pain specialist I saw for awhile, who I didn't list on here, who suggested that maybe I needed to be "evaulated" for neuropathy instead of RSD. I dunno where to go for that though, or what tests to ask for (the LizaJane site is down, so I can't go there to get a list). Until this all showed up when I was about 19, I had always been really, really healthy, so no other health conditions before this. What do you see here that has NOT been done that should be done/considered here, for me? (Right off the bat, I can see from some research I've done recently that somewhere along the years my doctors should have done an anti-HU antibody test [tests for cancer-caused neuropathies, it looks like?] and definitely an ANA test [for lupus/etc--I think no one ever did that one b/c all my SED rates kept coming back normal]). What else am I missing here that I should be asking for?


Neurologist (have had two of them, one in each city I lived in): Did MRI of my hand/wrist where my symptoms started, x-rays of hand/wrist where symptoms started, EMG of hand/wrist where symptoms started, cortisone injections (thinking maybe it was inflammation of the tendons causing the pain, they were just guessing), MRI of brain w/ and w/out contrast (normal), second MRI of brain w/ and w/out contrast 2 yrs later (also normal), MRA of head/neck w/out contrast (normal). Also routinely makes me walk in straight lines, follow her finger with my eyes, touch all my fingers together, make fists, blah blah blah. Most of <knock on wood and pray really really hard> my symptoms so far are sensory, though, except for some tremors. So far <again, knock on wood and pray really hard> I do fine on all the walk-a-straight-line-and-such stuff. Because of this I feel my doc isn't taking me seriously in terms of how concerned I am over my symptoms.

GP/Internal Medicine (again, one in each city I lived in): CBC (three times), Thyroid (three times), SED Rate (three times), glucose/etc., Lyme disease test, Vitamin B-12, Vitamin D, complete metabolic panel, basic metabolic panel, c-reactive protein, hormones, cholesterol, iron levels, 24 holter monitor (heart monitor). All normal except Vitamin D was low, and Vitamin B was on lower end of normal.

ENT: CT of sinuses, rhioscopy [where they put a little scope inside your sinuses], CT of neck, MRI of neck (skull base to thorax, I am hoping they got some of the face in there too but I dunno) to check salivary glands (no tumor or stones were found, he thinks they are perhaps just backed up or inflamed on the one side?), also will soon be doing a look at my esophogas at my insistence.