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Magnate
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Join Date: Aug 2006
Posts: 2,871
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Magnate
Join Date: Aug 2006
Posts: 2,871
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Quote:
Originally Posted by LinJane
I just need some friends right now. First I am diagnosed with Disc herniation, 10 years ago; have disc replacement. Didn't work. Dianosed with TOS, have rib-resection/Scalanectomy in 2000. Pain free for years due to Dr. Togut. Love him. 2005 symptoms come back. Have seen Dr. Schwartzmann, Dr. Togut and recently Dr. Pappagallos. Confliction diagnosis, TOS, RSD, constriction of nerves and veins.
I am so at a loss. Fighting with husband. He doesn't believe I'm in pain. We fight constantly and am concerned. Causing chest pains and other issues. Also, he is isolationg me from my family.
Sorry, Linda
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Linda don't be sorry for anything. We are all family here.
I wish I knew exactly what to say or have the answers, it is a difficult time. I do hope that you do not allow the isolation and use your great love of family to keep those you love close. I have seen spouses that are in not a good place try to isolate and turn other family against them to keep control. They do not want those people to hear or see how they treat you. Isolation is a control method.
You do need to find support....If you had a list or have some names follow up, you need to get rid of the chest anxiety to reduce the pain. The stress increases your pain, but you know that.
Having a supportive companion is not what TOSers generally have because they do not get the pain because you do not walk around with a cast on, there is no shoulder replacemtent or limb loss....No heart on the outside broken and draining.
it is like we need a sign to touch me with gentleness, and treat me with understanding and kindness. In return I will always be there for you as strong as I can be in my heart.
Hugs to you and I think of you so often and add to my list for prayers.
Di 
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. Pocono area, PA
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