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Old 06-07-2009, 10:25 AM
antonina antonina is offline
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Join Date: Nov 2007
Location: manhattan, nyc
Posts: 272
15 yr Member
antonina antonina is offline
Member
 
Join Date: Nov 2007
Location: manhattan, nyc
Posts: 272
15 yr Member
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Hi Nick,

I too am a member of the chemo induced PN club. I had 5 Taxol & 6 Carboplatin rounds about 10 years ago. After about the 5th treatment, I was only able to get around via wheelchair. I have progressed (?) over the years to using a walker and do so at the present time.

I learned, much to my dismay, that chemo PN is sometimes permanent. Back in '99 during my chemo there was an "experimental" drug called "amifostine" which, when given prior to chemo, was shown to protect against PN. Today it seems to have won acceptance. If your mom needs more treatments she should bring up amifostine as an adjunct rx. In addition, there are lots of studies that link the use of glutamine to help with PN.

To date I haven't found anything which has helped my drastically altered quality of life. But I haven't given up. I suggest that you read the stickies which offer lots of good info.

Good luck to you in helping your mother.
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"Thanks for this!" says:
mrsD (06-07-2009)