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Old 06-07-2009, 03:25 PM
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
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Rach, It sounds to me like these doctors are full of it. Cognitive plasticity?! Is that the best BS they could come up with? Just look up plasticity. Having good cognitive plasticity is a great goal but it's not a disease. The more "plastic" your brain is, the better off you are.

If you had obvious symptoms like ptosis that improved during the Tensilon test, then that is a positive test. My neuro tested my muscles before, during and after the test to see if they were weak, then improved, then weak again; which they were.

Do you have to be on death's door before you get help in the UK? It sounds like you are close anyway. I'm really worried about the damage those low O2 stats are doing to your body, especially when you're sleeping. What kind of "excuse" besides holding your breath can they give you?! You can't hold your breath while you are sleeping, so why don't they do an overnight oximetry study on you?

I'm sorry you are going through all this. It is horrid. I can't believe there aren't higher standards for medicine over there.

Annie
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