Hi Barbara,
I too have very bad reactions to medications. Since the thymectomy in 02, I only take mestinon, sparingly, because of the side effects. After 10 years of having MG, I've pretty much learned what I can and cannot do. I listen to my body and try not to push myself. I have good days and bad, just like everyone else. I am very grateful I have come so far and since it's so unpredictable, I take it one day at a time. It's been a long road, and I've just learned to deal and work with it. Hopefully newer and better meds with fewer side effects will be available in the near future. We've come so far already. Hope you are having a good day!
Take care,
Pat