Hi, I'm new here and am desperate for ideas, advice, etc.

I feel like this situation is unique but hope someone has expirenced something like this and have some advice to offer.

My boyfriend of 10 years started having "episodes" 4 years ago. When it started is was just hallucinations- he'd see a beam of light or something of the sort. Then it became brief episodes of him losing touch with reality and twitching.

Sometimes he will go a few months with no problems. It always starts with him being off. He'll be grumpy or he'll see stuff and just be generally different. When it happens he becomes very scared, doesn't know me, doesn't know where he's at, precieves himself in a nightmarish landscape, twitches, makes repetitive movements, smacks his lips, doesn't make any sense and will draw up so bad he'll slide off the chair. He often tries to hide under pillows or blankets. He cries and is terrified. It will last for under 3 minutes then he'll come to and be SO thirsty he'll drink a whole bottle of water in a few gulps. He'll be a little wierd the rest of the day and is fine again.

It looks like a seizure but I didn't know siezures caused hallucinations. He says he feels like he goes somewhere else.

We are seeing a neurologist. So far testing has come back normal. I feel like we aren't being taken seriously- he doesn't have another appt. until August! I can't do this! I'm so scared, I don't know what's happening. Can anyone help?