Quote:
Originally Posted by daniella
I am not in Ca anymore and I try to not talk bad about any place or doctor unless there is something major because I would think they have helped someone and I would not want anyone to miss out. I did not attend the pain clinic but saw an anestesolgist at Ucla. I did do the Cleveland pain clinic well for like 5 days. I do feel there is a place for programs like this but there needs major revamping. I like the idea of mental support and physical rehab but needs to be more tailored to the needs of each and also with some pain control other then just mental coping skills
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My wife who has full blown RSD did the mental coping thing for 4 years with plenty of advil thrown in. She finally caved in and I desperately seeked out doctors every where around us and ended up at a teaching hospital in Baltimore with the initials J.H.
It was one of the worst experiences my wife and I ever had. It all started when we checked in. With all her records in hand and MRIs etc. they ask for her referral in which we faxed to them weeks before from which they set the appointment. No, I don't have the referral , you should have the fax, in which they said they didn't. I said they must because you set the appointment from the fax the PCP faxed you. I tried calling the PCP to resend the referral in which the whole office was out to lunch for an hour. The receptionist said thats too bad you must reschedule I then pulled out my credit card.
Waiting in the examination room my wife was in so much pain she held out her arms away from her body like they were on fire and lifting her feet off the floor at the same time while sitting. Her teeth were clinched and eyes were bulging when a disgruntled nurse rolled her blood pressure machine into the room and grabbed Suzy's arm to wrap the cuff around without saying a word. You can imagine what Suzy's reaction was and told the nurse you can not wrap that cuff around my arm and pump it up! The nurse insisted, I chimed in and told her she has RSD and is in severe pain and then mentioned if she has a wrist cuff instead? The nursed huffed and rolled on out of the room. A young doctor soon entered the room and stated that he realizes people may be in pain but there is no excuse to be rude to the nurse, I then explained that Suzy has RSD and is suffering as we speak and the nurse grabbed her arm and was determined to take her BP around her upper arm regardless, didn't say a word to her when grabbing her arm and had a bad attitude herself. I repeated that Suzy is in extreme pain and that if they have a wrist cuff they can get the BP that way. The young doctor (not the one we came to see) insisted that Suzy take the blood pressure around her arm or leave and that we have 10 minutes to think about it.
We left and was billed 600 dollars. I was speechless and never again will I ever sit there and not be more aggressive with twits ever again.
