Quote:
Originally Posted by shandi
I went to my son's 5th grade graduation and It hit me so hard to think back and realize all the school trips and school activities I have missed because of the pain with RSD, I just broke down and cried. Now he is growing up so fast and I can never go back to have the memories and nor will he having his mother by his side when other parents was always involved in everything with their child. I beat myself up about this and have tried to explain to my son why I wasn't there and I was so sorry and he replies it's ok mom , When I know it hurt him. I hope I will get a chance one day to try to make it up to him and hope he doesn't remember when he is older my mom never went any were with him. We have to miss out on so much in our lives living with RSD and it's even worse when others doesn't understand the pain with RSD and how it affects our lives. Shandi
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Hi Shandi and welcome to this compassionate group that can understand what you just said. I've had RSD 13 years and my husband and daughter definetly have expressed their loss and sadness too. We, that have RSD, suffer in a lot of different way, but things change for our families and friends too.
Unless you are living it or living in it, it's difficult for others to truly comprehend the emotional pain and loss. I've seen a neurologist that is also a psychiatrist for the last 5 years and he has truly helped me in adjusting to this ''new life' and make the best of it.
This forum has been a huge part of getting thru this day by day. Hope you stay with us and receive the encouragement too. Tell us a little about yourself under 'introductions' We would love to get to know you. Your friend, loretta