View Single Post
Old 06-10-2009, 11:55 AM
screwballpookie screwballpookie is offline
Member
 
Join Date: Jul 2007
Posts: 207
15 yr Member
screwballpookie screwballpookie is offline
Member
 
Join Date: Jul 2007
Posts: 207
15 yr Member
Grin

Hello Shandie,
I really hope things are going better for you. I know exactly what you are going through. I have a 13 yr old daughter. There are so many things that I can no longer do with her and on top of things she is 13 and teenagers will be teenagers. One thing you have to remember you are still able to go to some of his school functions and that really means a lot to a child as they get older. Trust me I know. My mom was not there for us at all when I was younger nor was my father. To this day my parents aren't there for me. I have a hubby and a daughter that don't care what i am going through they don't even want to learn the basics. I would love to be inside there heads just to know how they REALLY feel. Sometimes my daughter don't even want me around. She is embarrassed cuz of me. I don't think my hubby really likes what is going on either. It is really tough, but we are strong no matter what and we can make it through this monster. We can't let this monster win no matter how tough it gets. Its a bad thing to deal with but this is the way God wanted things even if we don't understand. We can only take one day at a time and deal with things as they come not what lies ahead. I am still trying to learn that and I am getting better at it, but remember you need to keep your stress down as well because that makes me feel worse. Maybe that is not what happens to you but try to take care and take one day at a time. One last thing enjoy your son as much as you can and don't let anything take away your happiness. You deserve to be happy and take everyday as it comes and every minute of your day to think happy thoughts when possible while spending the time you can with your son. You deserve the best like we all do.

Sincerely,
Tracy Tracy(screwballpookie)

P.S. Forgot to let you know that i have had rsd for 7 years. So i know what it is like. Take care and be happy!
















Quote:
Originally Posted by shandi View Post
I went to my son's 5th grade graduation and It hit me so hard to think back and realize all the school trips and school activities I have missed because of the pain with RSD, I just broke down and cried. Now he is growing up so fast and I can never go back to have the memories and nor will he having his mother by his side when other parents was always involved in everything with their child. I beat myself up about this and have tried to explain to my son why I wasn't there and I was so sorry and he replies it's ok mom , When I know it hurt him. I hope I will get a chance one day to try to make it up to him and hope he doesn't remember when he is older my mom never went any were with him. We have to miss out on so much in our lives living with RSD and it's even worse when others doesn't understand the pain with RSD and how it affects our lives. Shandi
screwballpookie is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Summertime (06-17-2009)