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Old 06-12-2009, 06:35 AM
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Grand Magnate
 
Join Date: Jan 2008
Location: Ellicott City, MD
Posts: 3,834
15 yr Member
kicker kicker is offline
Grand Magnate
kicker's Avatar
 
Join Date: Jan 2008
Location: Ellicott City, MD
Posts: 3,834
15 yr Member
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You are using computer - try pp and primary progressive, SP and secondary profression. You sometimes get different results with different word usage.
Keep your doctor in the loop, sometimes they know something.Read forums, sometimes you hear it there first. Hear something mentioned, google it, write it down, remember it.maybe it'll hit clinical trial one day. I knew of upcoming trials at UMM and JH in Baltimore before places and they jnew my name. But by time they came I was 6.5 on EDSS. My doctor at JH was involved, tried to get me walking. Didn't work. Networking helps, Twitter maybe???? I can travel and stay with family some places, keeping idea of friend of brother involved in major stock share in stem cell company to promote me ASAP if trials come up, can stay with other family. This is work, sometimes I take a vacation from looking, then get all involved another time. Good luck!! Post here, you're part of our loop!! Being 6.5 on EDSS (Non-ambulatory) makes me ineligible. Most clinical trials seem to measre sucess on physical progression in walking.
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PPMS, DXed 2002 Queen of Maryland
Wise Elder no matter what my count is.
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