Hi Stressedout,

I'm so sorry to hear that you are dealing with all of this right now!! I really wish I could help you and ease your pain and problems but I can't unfortunately. Please just know that you are in my thoughts and prayers and if you ever need anyone to talk to, I am here for you.

I can totally relate to what you are going through right now!! I have been in lots of pain for the past week and had to miss 2 days of school this week because of it. My knee has been killing me as I have some issue going on in it (not sure what right now until I can see someone about it) and whenever I bend my knee, it hurts a lot and brings tears to my eyes. It is so annoying as everything thinks that I am really strong because I have RSD and some people just think that I can cope with everything that this disease chucks at me, even when I can't and feel like giving in. Like you, I just want something to help but nothing I have tried as helped really.

I know it is really hard (trust me, I do) but please don't give up hope of finding something that will help you!! You HAVE to have faith that things can get better when dealing with this awful disease even though it is really hard at times. Without hope, we have nothing!!!

Do you see a Psychologist or someone to help you through your RSD?? RSD affects your life so much so it's important to have someone that you can trust to talk to. My first Psychologist was useful however I see a new Psychologist at London and she is really nice and has given me some 'coping' techniques which help a little. I still get depressed but know I can email her if/when I have any problems so it helps.

If the pain gets really bad, please go to the ER! I know you probably don't want to but you shouldn't have to cope with all this pain!!! If you do decide to go, take some info with you on RSD for the treating doctor to read. I don't go to the ER as over here in the UK, none of the doctors seem to know anything about RSD. My mum usually calls my PM Dr and he can usually see me almost straight away or the next day.

I hope you are able to get an appointment with your doctor soon and that he is able to give you something to help you. Maybe try a TENS machine if you have one or get some Epsom Salts to see if they help you in the meantime.

Please know that I am thinking about you and totally understand what you are going through! If you ever need/want anyone to talk to, I am here for you!!

Take care of yourself. Sending many pain free hugs your way!

Alison.