Member
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Join Date: May 2009
Posts: 586
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Member
Join Date: May 2009
Posts: 586
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Hi Sue,
Welcome to our little group! I am so happy to hear you found a neuro that gave you a diagnosis of MG and didn't take it back when your labs were neg. Sadly, your case is the exception and not the rule. While I believe the neuro's are starting to change their way of thinking, far too many are still suffering with this disease and not receiving the meds and care they need. Everyone is different with MG and it is so unpredictable. I have had it for 10 years and I would say my symptoms peeked at about 2 years when I was finally diagnosed in 01. I am so glad you have responded so well to the mestinon. If you don't mind my asking, what are your symptoms and how long have you had them? I wish you all the best and hope you continue to do so well. Sorry I couldn't be of more help, but I'm sure others will have more to add.
Take care,
Pat
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