Hi Sue,

I wrote a long reply to you and apparently I timed out and it went poof. When my eyes are not cooperating it takes me so long to type. Well, I'll give you a shorter version. Your story sounds so much like mine and many others. I had ocular & gereral symptoms at the same time. When I was diagnosed I was prescribed Mestinon and the neuro wanted to start me on pred, but I chose to take only Mestinon. I have trouble with many meds, so when he wanted to try another drug, I forget the name, I didn't take that either. After about a year, I started getting worse and he highly recommended a Thymectomy. I had 3 days of plasma pheresis followed by surgery. I continued on the mestinon as often as I could tolorate the side effects and saw small improvements every day. By year 2 and 3, I saw the full benefits of the thymectomy and improved by 70 to 80 percent, which is wonderful. I still have bad days, but they are few and far between compared to having them almost daily. I remember reading that some people need to have their mestinon increased or may have to stop it for a short period of time and restart it. I don't recall reading here that anyone has had to do that. You may very well do just fine on the dose you're taking for a long time. I'm sure you and your neuro will discuss that as you go along. It would be wonderful if the mestinon improved the lymphedema! Any questions you have about meds or treatments just ask and someone here will be happy to help you. There are may posts as well with this info. This is an incredible site and everyone is friendly, supportive and will always be here for you. We are all MG'ers, so we understand. Take care and keep us posted.

Hugs,
Pat