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Originally Posted by ali12
Thank you Daniella and Ada for your input!!
My knee is hurting quite a lot again today. I have been sat with it bent on the bed and have noticed that after about 2 minutes or so, it starts hurting a lot and locks up. When I manage to straighten my leg, I get a deep aching pain that can take a few minutes to go and brings tears to my eyes. I have been told that I need to keep bending my knee for PT but it is getting pretty hard as it is way too painful sometimes! I'm going to ask my mum to rub some of the anti-inflamitary cream into my knee in a bit again to see if that eases the pain any and also take a Tramadol to see if that works. Tramadol doesn't help with my RSD pain but my mum said it might be worth taking one to see if it helps any.
Daniella - I totally know what you mean about it being hard to figure out what is RSD and what isn't! Most of the time, everything turns out to be from the RSD but the first time you don't go and get it checked, it will probably turn out to be something else that can be easily fixed - it's so annoying!!! I'm looking forward to when we split up from school to be able to relax a bit! I'm not sure what we have planned yet but me and my mum are going to see my grandad in Spain in August for a few days so that should be nice as I haven't seen them for a few months! Thanks again for your input!
Ada - So sorry to hear about all the injuries you have had to deal with!!  I can't imagine how hard it must have been to deal with all of them for such a long time without getting a diagnosis! It's awful that so many doctors just let us suffer in lots of pain without getting any help! I'm Hypermobile so some of the joint clicking in my knee could be from that however I have never noticed it before. Me and my mum have also been wondering for a long time whether I could have something else going on as well as the RSD and have mentioned it to my PT's and all they say is that it is possible but they really can't tell until we get the RSD and Dystonia under control more which is really stressful!! They have mentioned that I could have some spinal issues as I sit very curved but wont really look into it until the RSD gets a little better. I'm not sure when my next appt is with my PTs but will dHiefinitiely speak to them and see if they can have a look at my knee and see if anything else is going on. Thanks for all the info! |
Hi Ali,
I'm so sorry about your knee pain. I sounds like you definetly need to have a x-ray, MRI to see what's going on inside. I went to an orthopedic knee specialist before rsd for clicking sound and knee pain. That was about 15 years ago, two years before rsd. he said the tests showed osteoarthritis. I had been real active all my life, track, water skiing, snow skiing, running, 40 miles a week. He just had me do adjustment on my aerobics class so as not to impact the knee. It wasn't the kind of pain you are having by any means. But now I have RSD in my knees too. full body. If you were to push your fingers on your knees or back of your knees , is there an indent that stays a while. That shows water retention. And there in water retention when there is inflammation. Inflammation goes along with RSD, and fibromyalgia. Someone posted about anti-inflammatory diet last week and I've been on it since. about a week now and noticed a big decrease in fluid at my elbows and less bone pain. I'm going to stay on it. There are definite foods that build up your immune system and foods that heighten inflammation. I've been doing additional research. One site by a rsd specialist from Florida that is now retired, but has his website up is
www.rsdrx.com There is a part about diet called the 4 F's and also the part called puzzles is really good. Puzzles is a list of about 140 questions by his patients and his answers.
Hope they do the right tests to see inside your knee. I want to tell you how much i enjoy your writings and how encouraging you are to all of us. I'm 61 and my daughter is 30 so you feel like a granddaughter to me. Take care and say hi to your mum for me. Your friend, loretta