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Old 06-14-2009, 01:10 PM
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reverett123 reverett123 is offline
In Remembrance
 
Join Date: Aug 2006
Posts: 3,772
15 yr Member
reverett123 reverett123 is offline
In Remembrance
reverett123's Avatar
 
Join Date: Aug 2006
Posts: 3,772
15 yr Member
Default Suggestion

Lindy's idea is a good one. It helps to overcome the problems of getting around and the stress of confrontation.

There are at least two forms of writing that might be in keeping with her suggestion. One would be a first-person opinion or history type approach with a single author. The other could be a joint product of the combined efforts of all PWPs in the form of a Wiki. Perhaps this group could hammer out a table of contents sort of outline to define the structure. Once that was done and a bit of starter text in place, it could be opened to the world at large. The addition of the first-person writings as protected works woven through the wiki could produce a pretty cool finished form. It should have enough uman interest to attract a little publicity if handled well.

This would not be a wiki like wikipedia relating purportedly factual information, but rather more a collective opinion. We have an agenda that we want to get out there and the table of contents outline would be critical. There should be a way that it can morph as needed but only under the control of a steering committee - that's us. Could be interesting.
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000.
Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well.
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