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Old 06-14-2009, 05:04 PM
lindylanka lindylanka is offline
Senior Member
 
Join Date: Sep 2006
Posts: 1,271
15 yr Member
lindylanka lindylanka is offline
Senior Member
 
Join Date: Sep 2006
Posts: 1,271
15 yr Member
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okay, another idea, for next year, WPC, say we took paulas 'book' that she needs help with, chapter topics defined by people here, really looked for the best writers here and elsewhere in the pd world, those who really know their topic or area of specialist knowledge, and got started, posting initially to a wiki but also fishing around for support and sponsorship from the orgs. From initial topics draw out an awareness campaign display for WPC, display boards with text drawn from potential 'book'. This would promote book, wiki, disseminate awareness and involve orgs, medics, pharmas, etc in an engaging way. Nobody would have too much to do, and it would be an open ended project with the prospect of further development. Patient views could be presented in a very non-confrontational way, that nevertheless would have impact. Everything we have proposed here, and in past posts could be looked at, from the alternative thinking in terms of care, exercise, diet and awareness, to the pd experience, to the patients wish for treament that addresses their needs, and the potential value of patient involvement in decision making................. just trying to join th dots........

Lindy
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