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In Remembrance
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Join Date: Aug 2006
Posts: 3,772
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In Remembrance
Join Date: Aug 2006
Posts: 3,772
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A suggested format
We can turn out a wonderful work, but if it doesn't get noticed it never existed. How about if we turn out something that only we can write, that just might get noticed, and will be more than a flash in the pan?
There is no shortage of things directed at the newly diagnosed. But it is all by the orgs, docs, Big Pharma, etc. How about if a bunch of old heads like us put out a handbook for the Noobs that told it like it really is. Not a bunch of tripe like "Eat prunes." but things like "Sinemet is addictive." Not "Listen to your Doctor." but "Your Doctor may know less than you do." There's nothing like it and it has media appeal. It's also damned hard to counter.
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000.
Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well.
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