Hi Sue and welcome. I think that MG is such a difficult disease to pin down. And just when you think you know how far to push yourself it changes again. I have had a lot of trouble taking mestinon personally. It gives me migraines, so I take a really strong preventative in order to take it. I think I am alone on the migraine thing tho. But I do have to take a lot more of it now than when I first started taking it. Well again Welcome and I try to write down all my questions that I come up with for doctors on a notepad in my purse. That way I remember them all. Good Luck and keep coming back.