Originally Posted by diagnonsense

When I was first diagnosed I was told primary sensory motor mixed demylenating with a secondary axonal loss.

Now, they focus more on the demylenating part, and the lack of feeling and motor loss.

I've lost feeling from my calves down at one point and developed foot drop.

My sxs are intermittent, and at times I don't notice at all, and at times are terribly bad to the point I think I may hurt myself. (from falling)

I just told my mother to get an EMG, and she I think is going to get prior auth to get it done.

She has pain in her wrists and from her back down through her legs to her calves.
Hers is more nerve entrapment in her spine though.

Probably a bit more complicated if she has a daughter with neuropathy.

I don't have spinal problems.

Good luck figuring it out.. "ideopathic" is something no one wants to hear.