Quote:
Originally Posted by daniella
Hi. I am so sorry about your continued pain and your dad. I am glad your mom is there for you. I can relate as my mom is my hope but I have spent the day crying from other family members. It makes me so upset/lonely/frustrated I could go on. I am not sure my point other then I understand. You stated you have arthritis and I think stated other conditions other then rsd though I could be wrong. Anyhow do they know why this is for you? I am not sure if your rsd is from an injury but it seems like you have a lot other going on in your health as do I. I am older but still too young for some of the things and part of what I was trying with no luck is to find they why this is happening. Like at one time and still it was leaning towards auto immune. It may not take the rsd part away but may help other conditions you have and in turn make you feel better. I also wonder if the PT is not the right type of things for you in the current? Not saying not to do PT but just maybe different types of workouts. I have no clue just trying to think out of the box. Well feel better and you are not alone.
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Hi Daniella,
I'm so sorry that your family don't understand RSD either. Family can be so cruel sometimes!
I honestly don't know what I would do without my mums support - she has always been there for me through everything and always believed in me. I'm glad you have your mum also. We have tried everything to get my family to understand RSD but they wont. My dad wont even come to hospital appointments with me to stop my mum getting so stressed!!! I missed school again today as I don't feel well and my mum had to text my dad to tell him not to start complaining at me as it was obvious I didn't feel well as he usually comes out with some sarcastic comment about why I haven't been or says "it cant be that bad"!!!!!! My mum is always having arguments with him about his attitude but he never listens and just says it is our fault!! RSD really affects everyone, not just the sufferer. I used to be really close to my dad but now he hardly speaks to me and I guess I could never really forgive him for not being there for me when I needed him the most. I hope you are able to get your family issues sorted out as I know how horrible it is and how the stress doesn't help at all!!
I'm sorry you have other issues also other than the RSD. I have quite a few illnesses other than RSD including Hypermobility Syndrome, Rheumatoid Athritis, Dystonia, Myoclonius and some postural issues. My PTs also believe that I could have some other issues with my back but can't really diagnose those until we get the RSD more under control. Most of my other illnesses are as a result of RSD but have been told that I had Athritis before I was diagnosed with RSD though no one is sure why I developed it so young as no one else in the family really has Athritis at such a young age like me.
I have started taking my Tramadols again today as the pain as been really bad and I haven't been sleeping. My PT's said I could start taking them again to see if they helped any so I hope they do.
My mum called the doctors today and we can't get an appointment to see my GP until the 29th as she is really busy. She is really nice though so hopefully she will help - I just wish we didn't have to wait so long but at least if we don't get any answers from my PTs, I have a back up plan!
Thanks again for caring and posting. I hope you are doing better and i'll keep you posted!