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Junior Member
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Join Date: May 2009
Location: Alabama
Posts: 62
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Junior Member
Join Date: May 2009
Location: Alabama
Posts: 62
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Welcome Shandi,
You have come to the right place for support and understanding. We have all experienced the loss of participating with our families, co-workers and friends. Remember, you may be unable to physically participate but you are the same person inside (heart and soul) that you were before this awful disease set in. Don't forget who you are!
Educate your family and friends so they can understand what you are going through. Even the younger ones will understand to some degree and want to help. It will not only help you get stronger but it will help them be stronger and have more understanding. Find creative ways to participate in activities and keep a postive outlook.
My children are grown but they have researched this disease and have really tried to get a handle on what it is and does to me. I can't just jump in the car for a weekend visit anymore, can't shop and walk the dogs with them anymore but I can call them often and share their lives with them. They now email me more and send lots of pictures to make sure I am not left out.
My heart goes out to you and others that are struggling with this terrible monster. I know it is easy to throw out suggestions and words of encouragement when you are the one dealing with your particular situation, but know that your children love you unconditionally and will adapt to what you create around them. Create a positive circle of love and you will be blessed. Feel free to PM me anytime if you just need to talk. 
Your new friend
__________________
AJ
** W/C injury...Diagnosed with CRPS w/ nerve damage in Apr '09, after a long 2 ½ yr battle with a knee injury. RSD has now spread to entire body.
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