Has anyone ever gotten to the point where they decided they were DONE?
I have been taking Avonex injection for more than a year and have had progression.
I can NOT do it any more. I skipped last weeks injection and will not be taking this weeks injection. I see a new MS doctor on Monday because my other one retired.
I went off of the prednisone too. I could not take it any more. I am feeling better. Not great, but better.
I was told by my psychiatrist that combining the anti depressant I am on and prednisone was not a good idea. My MS doctor wanted to do it anyway.
So I started a very low dose of prednisone. It did help my legs a little. I could tell a small difference and I am sure it would have been more impressive at a higher dose, but he wanted me on it long term.
I stopped taking it. There has to be a point where you have to stop. How many drugs can they expect me to take?
I am still on the ones I need for trigeminal neuralgia and spasms, and the AD, but I have to live my life too.
I take provigil to help keep me going.
I can not put that needle into my muscle any more.
I feel battle fatigued and I have only been at this a year.
LA