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Old 06-17-2009, 08:37 PM
Fiona Fiona is offline
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Join Date: Oct 2006
Posts: 492
15 yr Member
Fiona Fiona is offline
Member
 
Join Date: Oct 2006
Posts: 492
15 yr Member
Default new kind of patient advocacy group forming?

Hi everyone,
Times change. When I was first diagnosed, they didn't think there could be any kind of regeneration possible in the brain. Not to belittle efforts made in the past, but it seems like discussions of late have revealed quite a few people wanting and ready for something different than what we have had already. Should we do this?

How should we go about it? Start with a core group and invite others down the line? Should all those interested retire to some private form of group communication so that we can hammer out our ideas or figure out what we want to do before we go public with it?

What do you think?
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"Thanks for this!" says:
DejaVu (06-22-2009)