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Old 06-18-2009, 07:29 AM
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reverett123 reverett123 is offline
In Remembrance
 
Join Date: Aug 2006
Posts: 3,772
15 yr Member
reverett123 reverett123 is offline
In Remembrance
reverett123's Avatar
 
Join Date: Aug 2006
Posts: 3,772
15 yr Member
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I vote for the core group approach. Once we have our act together we can trot it out on the stage to see how the crowd reacts, but right now we need to focus on our view of the problem.


Quote:
Originally Posted by Fiona View Post
Hi everyone,
Times change. When I was first diagnosed, they didn't think there could be any kind of regeneration possible in the brain. Not to belittle efforts made in the past, but it seems like discussions of late have revealed quite a few people wanting and ready for something different than what we have had already. Should we do this?

How should we go about it? Start with a core group and invite others down the line? Should all those interested retire to some private form of group communication so that we can hammer out our ideas or figure out what we want to do before we go public with it?

What do you think?
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000.
Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well.
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pegleg (06-19-2009)