Quote:
Originally Posted by Sharyn
My partner is 26 years old,
in the past year he has started having severe headaches, pressure in his head and behind his eyes, pain behind his eyes, collapsing when he laughs, constantly tired, sleep paralyisis, blurred and double vision, loss of co-ordination, loss of balance, constant dizzyness, loss of muscle strength, agressiveness and loss of perception to name a few
He had an MRI which shows he has enlarged ventricles and a narrowing of the passage between the third and fourth. He had ICP monitoring, but his intracranial pressure is normal.
The surgeon intern we spoke to said surgery would not help him, as some people have enlarged ventricles its just the way they are - but my partner has only had these symptoms come on in the past year and they are getting worse everyday.
When looking at cases online, the normal protocol for enlarged ventricles is to try and resolve the blockage and narrowing, but he has been told there is nothing surgically he can do??
I dont know if anyone has any experience with neurosurgery who can help me, but any views would be greatly appreciated
We are in the UK so we get our treatment free on the NHS, which means we dont have much choice in regards to second opinions unless we go private- but with him not working now this seems like an unlikely option
Thanks in advance 
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Sounds like aqueductal stenosis. That's what strated my case of hydrocephlaus when I was 25 days old. he might need a shunt to control the ventricular size